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Rett UK

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Description

Rett UK was started by parents to provide emotional support, information, and advice to other families so they never have to face life with Rett syndrome on their own.

Rett UK is the only UK charity which provides professional support to people living with Rett syndrome across the UK.

Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.

Rett UK supports our families through a national helpline, including telephone, email and social media support, co-ordinate Rett specialist clinics in conjunction with the NHS, organize local support groups, as well as regional days and have a dedicated parental contact network. We also provide training for people who are supporting someone with Rett syndrome whether that is in a school, college, day center, supported living, respite or residential setting.

Attributes

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